My Physical Health

On this page I'm going to cover my health problems as related to my physical health. I'll talk about the problem itself and how it affects my life, I may talk about my interaction with people in the medical field and what I think of them and how they do their job. When I can check one of the items off the list I will and from time to time I may need to add a new item. Here is a link to my current medication list.

I'll put up links to other sites that can more professionally describe the issue and those links will open in a new tab and they will be highlighted like this. From time to time I'll put up pictures and unless I specify otherwise, all the pictures were taken by myself. When I want to show you a picture there will be a green glow around the link and it will act like this and there has to be enough room under the link to display the image that will fade into view or nothing will appear until you scroll down a little and and touch the image link again.

When I link to an offsite source of information, I only link to reputable sites, like:

Mayo Clinic

Cornell University

Stanford University

Harvard Medical School

Johns Hopkins University

The links below will take you to a specific section on the page, you don't need to navigate the site with those links, you can also scroll down the page and read as you go.

C.O.P.D.

Dementia

Sleep Apnea

Morbid Obesity

Type 2 Diabetes

Failing Eye Sight

Traumatic Leg Injury

Hidradenitis Suppurativa

Cubital Tunnel Syndrome

Medication Management

Type 2 Diabetes

I suffer from uncontrolled type 2 diabetes, I try to test my blood twice a day and rarely is it under 350 and it's been so high that the meter just says "HI" because the reading was off the chart and it couldn't display a number that high. Recently I bought some dentures, they don't fit my mouth very well and they're missing a tooth, without them I can't chew food. I tries to eat right, but my refrigerator is pretty small. Storing fresh vegetables and healthy food is impossible and I normally eats foods like beans or ramen, but it's all high in salt and carbs and I don't have a way to heat it, but I do have a kettle to make hot water for the ramen, and between the seasoning packet and the noodles that too is really high in salt and carbs.

Traumatic Leg Injury

Back in the 90's I was a long-haul trucker, I drove coast to coast delivering goods for people around the US, but in 1999 I was careless and fell off a loading dock at a fish packing plant out in Albany Oregon. I broke my right leg in multiple places. It was never the same after that, I had a lot of nerve damage and it never healed correctly, the skin in the area of the break turned a dark reddish brown, called a bronzing, it's caused by the trauma to the veins around the injury site where my skin is not getting enough nutrients or oxygen from my blood and the spots where the skin staple holes never healed quite right. It's not too swollen in this picture, it gets so swollen that my ankles disappear, I was told its mainly from eating salt but I also have really bad edema and that's where my leg feels like it's full of putty. I can push on it and it leaves a dent that takes all day to pop back out. This picture shows my legs wrapped in what's called an Unna wrap, sometimes my doctor wraps my feet also and then it's called an Unna boot. It's a compression bandage made from cotton that has been impregnated with a zinc oxide paste. The zinc oxide paste helps to ease skin irritation and maintain a moist healing environment. The leg pictures were taken in April of 2022.

A proper diet would help with the swelling and weight loss and exercise would help the edema go away and then my blood would flow right and my open wounds would heal properly, diabetics need to take care of their legs to avoid amputations. I've already told my doctor that I won't allow them to remove any body parts and when I refuse to let them, first I'll get gangrene and then I'll get blood poisoning and die. I was told it's a terrible way to go. This is another reason that adult foster care is a must for me.

Sleep Apnea

I have sleep apnea and from June of 2016 to May of 2022 when I finally bought an adjustable bed I was having to sleep sitting up in a broken chair covered in lawn chair cushions. The bed I have now is an adjustable bed and I still have to sleep with my upper body elevated. Prior to 2016 I was able to lay comfortably on a flat mattress because I used a machine called a CPAP (Continuous Positive Airway Pressure), the machine is basically a high-tech air pump connected to a nasal pillow, which is a type of cpap mask with soft cones that fit up against my nostrils rather than around my entire nose, and it has straps that holds the device in place and it blows air up my nose while I sleeps. It was uncomfortable to sleep with but it reduced the chance of me dying in my sleep. In 2016 when the supplier named A Turning Leaf, here in Salem Oregon, changed their policies and refused to mail me supplies anymore and because I have a physically disablity that limits my travel and I suffers from agoraphobia which is a panic disorder, it meant that I couldn't go out and get my own supplies, I had to stop using the machine because it was unsafe to use dirty air filters, especially since I also have COPD. The Oregon Health Plan paid for the supplies. I offered to pay the postage myself, but A Turning Leaf refused stating that it was "no longer economically viable to service my account." That told me that the risk of dying in my sleep was not worth the cost of a postage stamp to them.

When I called A Turning Leaf in May of 2022 to verify the date that they stopped delivering my supplies, the employee told me that he thought they were mailing supplies out again, unfortunately my CPAP machine has been on a shelf in the garage since 2016 and it probably can't be used again.

Failing Eye Sight

My eye sight is going, partially because I'm aging and maybe a little from the diabetes too. I recently tried to get glasses but wasn't able to. The Oregon Health Plan provides health care coverage for low-income people. I asked PacificSource Community Solutions for some help to cover the cost of the glasses.

In 2021 I was seeing a Dr. Daniel Shaohua Chen, who is a neurologist for my epilepsy and after the last clean electroencephalogram (EEG) I immediately fired him, and I wrote to the people at Oregon Health Plan and informed them that I was going to save them lots of money because they would no longer be paying for my epileptic seizure medication nor would they have to pay Dr. Chen anymore and that I would ask that they please help me get a pair of glasses with a small portion of the money they'll now save. The lenses I needs are only around $100 but I needs wider frames because I have a fat head, the name of the frames company is, wait for it... FatHeadz and I tried on the cheapest pair they offered at Wal-Mart and they were around $200-ish with the lenses, that's more than I can afford right now.

PacificSource Community Solutions never replied. I thought if I saved them $1000's by stopping my seizure medication and by dropping Dr. Daniel Shaohua Chen they would help me get a pair of glasses. I was wrong. If you wear glasses you know how bad it is when you don't have them.

Cubital Tunnel Syndrome

It's an injury to the Ulnar Nerve in my elbow. I've spent decades sitting at my desk working on my computer and leaning on my elbows. The injury became painful so I told my doctor what I was going through and he referred me to Neaman Plastic Surgery. Dr. Tsai requested an ulnar nerve conduction study on my elbow which was performed by Dr. Daniel Shaohua Chen, and the results were sent back to Dr. Peter Tsai who also runs his own clinic called Upper Hand Orthopaedics and is the co-founder of The Waverly Lake Surgery Center in Albany Oregon. He's a hand and elbow specialist.

He sat down with me in September of 2021 and he said he would do the surgery, but because of my high A1C (related to my diabetes) he wouldn't be able to do it in the office, but he would do it at Good Samaritan Regional Medical Center in Corvallis Oregon. He told me he would get it scheduled and let me know when. In March of 2022 after waiting nearly 6 months to hear from Dr. Peter Tsai, I started going to the Neaman Plastic Surgery website and using the contact form on their site to ask why I wasn't hearing from anyone and after many emails I finally got a reply from a very patient Medical Assistant named Kylee Pattee. Here is our conversation.

Here is more information on the two doctors at Neaman Plastic Surgery & Medi Spa that I dealt with. The first doctor told me he would do the surgery but that was a lie, his name is Dr. Peter Tsai and the second doctor also knew I had a high A1C score and requested a consultation, his name is Dr. Dustin Christiansen and after the consultation he wouldn't do the surgery either because I had a high A1C score. Both of them knew in advance that I had a high A1C score and they billed PacificSource Community Solutions for 2 consultations for a surgery I don't feel they ever intended to do.

C.O.P.D.

I have chronic obstructive pulmonary disease (COPD) which is a chronic inflammatory lung disease that causes obstructed airflow from the lungs. I have it because I smoked for over 35 years, I quit in 2018. Symptoms that I experienced include; trouble catching my breath, occassional wheezing, inability to speak sometimes, confusion, and swelling in ankles, feet, and legs. I think my doctor, Dr. Gordon Gillespie is by far the best doctor I've ever had and he works at Salem Clinic. I communicate with my doctor and his team on a regular basis, Here's a page that shows the exchange of information between me and them.

Hidradenitis Suppurativa

Since 2005 I've had a skin condition called hidradenitis suppurativa. This is what it looks like, a large cluster of painful sores all over my groin and up the backside. I mentioned to my doctor that they rub and that causes pain, when I sit, I'm sitting ON them and that causes pain, I'm always in pain. This sometimes goes on for weeks and eventually they grow big enough that one day they just explode and the bloody stuff blows out and drains down my legs into my shoes, I've ruined a lot of socks. It drains until the hole heals up then it starts filling up again, it's painful while it grows, it pops, it drains, it heals and then it all starts over. I once asked my doctor what the black lumps were and he said it was likely decayed tissue.

He referred me to a surgeon who examined it and she said she had never seen it so high up in the groin area and that she wouldn't do the surgery because "it would be too barbaric." All the tissue has to be cut out and since the condition creates tunnels under the skin, she would have to cut out large pieces of my flesh and it would be impossible to sew me shut because there would be so much flesh removed. The surgeon recommended I see a dermatologist. I went to Valley View Dermatology, which is here in Salem, and they examined me and wanted to prescribe Humira™ and I was overjoyed until I was told that my condition doesn't qualify for low-or-no cost medication for some reason. I had it biopsied once when I had one cut open in the Urgent Care department at the Salem Clinic and the results were that it's staph. Staph infections kill people. I don't want to die from a staph infection.

Morbid Obesity

Obesity is determined by your body mass index (BMI). This score is calculated by finding your height and weight on the BMI chart. Morbid obesity is defined by a BMI of 40 or greater. Here is a link to the Center For Disease Control And Prevention's BMI calculator. I'm 5'10" tall and around 340 pounds. My BMI is 48.8 and my has health conditions like high blood pressure and diabetes.

Weight loss is difficult. I read that only around 5% of people who are morbidly obese, are successful at losing weight without surgical assistance. I don't want surgery, I thinks I can do it with healthy food and excercise, but if not then it's an option. Gastric bypass surgery is the option I would choose if I had surgery, it works by sealing off most of my stomach, so I'll feel fuller faster.

In 2014 my doctor referred me to the Salem Hostpital to go to an orientation about bariactric surgery, I was eligible and the people at The Oregon Health Plan had approved the payment for the proceedure. In order to get the surgery I had to lose 20 pounds, quit smoking, and get my diabetes under control. I lost the weight and stopped smoking, but was never able to lower my A1C so I never got the surgery. Medication management and healthy diabetic meals would help me get my diabetes under control and then I could get the surgery that would likely extend my life considerably.

Medication Management

I forget to take my medicine. I forget frequently and have tried everything to remind myself but I continue to screw it up somehow. I tried email reminders and alarms on my phone, and even pill reminder apps, I just can't remember. I will stare right at them and not know if I should take them or not. So now I have a pile of pill packs. If I don't maintain a therapeutic level of the medication in my blood it won't work like my prescribers intend for it to. The Dispill® pill packs make it easy to get the right pills at the right times of the day, all of my morning pills are in a color coded package, same with noon, evening, and bedtime.

I know that I'm not in control and need help, and that's another reason that I need to be in an adult foster care home, I don't want to be here doing the same thing next year and the year after and the year after, there needs to be change and I need your help to achieve that change.

Dementia

I'm at the beginning stages of dementia. Sometimes I wake up and I don't know where I am or who I am, it's scary to think that I'm in someone else's home and I don't know how I got there. It freaks me out, I just sit there in the dark and try to figure it out. After a while it comes to me, kind of like slowly walking out of a thick fog.

In 2009 I bought a big truck and an RV. (Pictures: 1 & 2 & 3) I travelled around trying to remember my past. I went to places where I lived and they weren't the same as I remembered. I visited people from my past, I located an old friend in Las Vegas, Alisha, we went to school together in Washington State. I spent the winter in Vegas and we hung out a few times. I remembers going to a drive-in movie with her and her son and visiting Red Rock Canyon. I'm pretty sure we also went to the Hoover Dam.

My father died when I was 9 years old, I don't remember what he looked like, all I remembers is sitting on his bed and having him tell me that he had cancer and they only had about 2 years left together, I remembers when the radiation made my father's hair fall out and when he woke up in the morning he was bald and I laughed at him. He died 2 months later. I can't believe I laughed at him when his hair fell out. It wasn't my intention to hurt him, I was 9...

My youngest brother and his family live across town but I can't remember the last time we spoke. I have another younger brother and he doesn't like to talk to me, he says I repeat myself and that when I think I'm telling him something new, my brother says I've already told him that and he calls me a retard. I just need a little help. I'm not a retard and I don't like being called one, that's an ugly word and there's no excuse for my brother's behavior, he's not 9...

I Need A Hand Up, Not A Hand Out

Please make a small monthly contribution that will help me get a small room in an adult foster care home where I can get diabetic meals, dementia care, medication management, transportation to medical appointments, and help with daily personal care. I just want to be happy, healthy, and as independent as possible.

Please pray with me. My mental and physical problems have reached the point of excess. I need your help. I can't do it alone. I've been considering suicide rather than continuing down the path of mental illness, poor health, and hopelessness. Please pray with me

If you can't afford to make a small monthly contribution, could you possibly help with a personal care item or some medical supplies off my Amazon® shopping list, then I could put aside more money myself.


I Need A Hand Up, Not A Hand Out.
I Need A Hand Up, Not A Hand Out.

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Oregon, hand up, hand out, need a hand up, suicide, death, I wish I was dead, Adventures With Purpose, Jared Leisek, Doug Bishop, Matthew Wells, Power of Prayer, God, Jesus, Ask for Help, Jesus loves you. sick, crippled, injured, mentally ill, prayer, ask for help, begging for money, adult foster care, Salem, Oregon, Salem Oregon, hand up, hand out, need a hand up, suicide, death, I wish I was dead, Adventures With Purpose, Jared Leisek, Doug Bishop, Matthew Wells, Power of Prayer, God, Jesus, Ask for Help, Jesus loves you. sick, crippled, injured, mentally ill, prayer, ask for help, begging for money, adult foster care, Salem, Oregon, Salem Oregon, hand up, hand out, need a hand up, suicide, death, I wish I was dead, Adventures With Purpose, Jared Leisek, Doug Bishop, Matthew Wells, Power of Prayer, God, Jesus, Ask for Help, Jesus loves you. sick, crippled, injured, mentally ill, prayer, ask for help, begging for money, adult foster care, Salem, Oregon, Salem Oregon, hand up, hand 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suicide, death, I wish I was dead, Adventures With Purpose, Jared Leisek, Doug Bishop
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